There was this girl I went to school with. She was also in my Girl Scout troop. We didn’t hang out too much as we had a different circle of friends. Laura Canahuati and her husband, Mike, recently got some devastating news. Their 5 month old daughter, Avery, has been diagnosed with Spinal Muscular Atrophy (SMA). You can read about Avery and her bucket list here.
What is SMA:
SMA is currently an incurable disease caused be a genetic defect and it attacks the muscles which causes inefficiency of the major bodily organs – especially of the respiratory system – and eventually leads to death. 1 in 40 people are carriers of the SMA gene.
I wish I had huge connections and could make some of the big things on Avery’s bucket list happen, but I don’t (or I don’t think I do, do I?).
I wish I could make the SMA disappear. But I can’t. So instead, I will share (share, share, SHARE!) to make SMA known.
In my opinion, the Canahuati’s are handling this heart-breaking news with grace, bravery and a light-hearted spirit.
How can you help? Share Avery’s Bucket List and SMA with people you know!!
Please help the Canahuati family spread the word about SMA.
Sending up prayers for this beautiful baby and her parents!
My prayers are with this family and all who face the battles of SMA.